Diabetes 101

We were transferred to the Peds floor Tuesday afternoon and CJ was freed of all her IV/wires YAY!!! It's been a bit of a whirlwind since then with doctors/ dietitians/ nurses/ geneticists etc in and out of the room and with CJ back to her usual happy cheery self it's been hard finding the time to sit down and give updates. We have plowed through many books/pamphlets/and handouts and have each mastered testing her blood sugar and giving insulin. Those of you who are parents, remember the day you brought your first child home and you longed for an instruction booklet to tell you just what you were in for ... well CJ now has about 60 of them! lol I have to say that Eddie has been so strong and such an amazing Daddy I can't thank God enough for giving me such a rock to lean on, he has been there to take the first step time and again and give me the reassurance that I CAN do this. There have been a few tweaks and adjustments made to CJ's meds and there have been both highs and lows while try to determine the best regimen to control the diabetes. We are a bit of a different case since breastfeeding doesn't allow them to measure her intake of carbs and therefor cant calculate the insulin needed to compensate for them quite as easily. She was started with 4 units of Levamir which is a long acting insulin that needs to be given daily. Turns out 4units is just too much for her little body and we had a few scary lows the first day in PEDs but praise God we were able to control them through breastfeeding alone. She is not that comfortable with the sippy cup or bottle so giving juice to bring her out of lows when BFing isn't enough is going to be a challenge all it's own, I'm praying that since her hep-lock was removed last night along with the splint used to keep it positioned she will be feel more comfortable using them. She is also to be given .5units of Novolog (her fast acting insulin) when her blood sugar is about 180, we had a few numbers in the 300s last night but since a low is more dangerous then a high especially at night time hours we didn't adjust anything but starting today she will be given .5units of Levamir before bedtime to avoid that. I know that sounds like a whole lot of gibberish to many (and it certainly would have seemed quite foreign to me a week ago) but God has put some awesome mamas with children diagnosed type 1 who do understand all of this, in my path recently and they have proven to be a wealth of resource and support. We sat down with the Medtronic pump rep yesterday who is actually the brother of Molly (of The Molly Center) and we will most likely be heading in that direction, just awaiting word on how much of the $8,000 pump insurance will cover. Obviously we are a bit overwhelmed by the cost factor of CJ's condition as just 7 out of the 10 RXs we picked up yesterday were $120 ... for a 30 day supply. Not to mention even if the insurance company were to cover %80 of her pump cost that would still leave us with about a grand to pay out of pocket. I am trying ever so hard to keep my faith and remember that the Lord will provide, reciting to myself Proverbs 3:5-6 constantly. The few Sundays before CJ's diagnosis our Pastor had preached on Jobe and I truly believe God made sure that teaching was in my heart going into this, knowing that bad things do happen to good people and that this is not a punishment but simply something He knows we are able to handle. We just ask that you all pray we can keep our faith strong in spite of the roller coaster to come because I am sure that as long as our faith is in Him alone we WILL make it through! I also want to say a big thank you to the "owlies" who have been there to remind me of His teachings and words when things seem so overwhelming, know that you have provided me with more strength through Him then I could ever muster on my own!